FSR is a proud member of the National Organization for Rare Disorders, or NORD. Our friends at NORD are hosting an informational webinar about rare disease patients and the COVID-19 pandemic.
A Rare Response: Addressing the Covid 19 Pandemic
Tuesday, March 31, 2020
2:00 PM ET
More details below!
A Rare Response: Addressing the Covid 19 Pandemic
Tue, Mar 31, 2020 2:00 PM EDT
Are you a rare patient or caregiver with concerns related to the COVID-19 outbreak? Do you need strategies for coping, staying healthy and reducing anxiety during this uncertain period? Please join NORD for a special webinar featuring Dr. Marshall Summar, Chief, Division of Genetics and Metabolism, and Director of the Rare Disease Institute at Children’s National Hospital, Dr. Bernhard Wiederman, Infectious Disease Specialist at Children’s National Hospital, and Dr. Albert Freedman, Counseling Psychologist and rare parent, for guidance on living with a rare disease and maintaining your physical and mental health in the time of COVID-19. This webinar is perfect for patients, caregivers, advocates, students and the public
Dr. Marshall Summar is the Chief of Genetics and Metabolism and the Director of the Rare Disease Institute at Children’s National. Dr. Summar is a physician, clinical geneticist and researcher, best known for his pioneering work in caring for children with rare diseases. He has been listed with Best Doctors in America since 2004. He is currently the Chairman of the National Organization for Rare Disorders (NORD) Board of Directors.
Dr. Bernhard Wiedermann is a specialist in pediatric infectious diseases. His research and clinical interests include pediatric infections, unexplained fever, infections in immunocompromised patients, medical education and educational technology, and evidence-based medicine.
Dr. Albert Freedman has a unique voice as a psychologist and the father of an adult son with a rare disease. He speaks at conferences nationally on challenges facing families of children with special health care needs, and provides consultation to health care organizations and schools. As a practicing psychologist in independent practice, Dr. Freedman has provided counseling services to children, adolescents, adults, and families for over 20 years. Dr. Freedman’s 24-year-old son, Jack, lives with Spinal Muscular Atrophy.
Katie Kowalski is the Senior Program Manager for NORD’s Educational Initiatives. In that role, she works to develop and implement educational programs for medical professionals, patients and their families. She operates key programs within NORD’s Education Department including continuing medical education, the educational webinar series and student programs.